Door Prizes

This latest blog comes to you from room 3009 in Peyton Manning Children's hospital.  Sophie was directly admitted to the hospital again this afternoon after our weekly check-in with the pediatrician.  She has lowered her oral intake again (only 7 1/2 ounces in 14 hours) and only two pee pee diapers all day.  She had not gained any weight in the last week and has been crying more and smiling less.

As we were leaving the admitting area I noticed a new (still in the wrapper) Baby Einstein DVD and a book.  Puzzled, I said to the nurse, "do you get a door prize when you have visited the hospital five times?"  She just smiled and laughed....thank goodness she had a sense of humor or maybe it's the other way around.


My first thought after speaking to the intern assigned to Sophie was that we needed to pack our stuff and go home.  He told me how "perfect" she was (not that I disagree with that), that she "looked" healthy, and that if she came into his clinic, he wouldn't see her because she was fine.  He proceeded to tell me that he was certain they would do nothing different this time around.  I am fairly certain this man has no idea who he is up against.  If he thinks that kind of talk will fly after four previous hospitalizations he is in for a rude awakening.

Thank goodness, Dr. Aguilar, an amazing person, was on duty tonight.  His first comment was that we would not be seeing interns again (he must know who he is up against) and then he proceeded to spend an hour just listening to our concerns ~ interjecting questions here and there.  He is arranging for other speciality consults (neuro, GI, geneticist, metabolic) and will at some point we will all sit down for a CARE conference where we will come up with a plan to figure out what is really going on with Sophie.

I continue to be amazed by how strong and brave our little girl is.  They poked her four times tonight to find a vein strong enough to hold the IV as her veins kept blowing due to dehydration.  She is of course completely exhausted right now but God how she amazes us! 

"oh these times are hard and they're making us crazy, don't give up on me baby."
                                                                                                     ~ For the First Time, The Script