Thank you to everyone who emailed, texted, or called today to check on Sophie! We are happy to report that the PEG tube was placed with little trouble and the MRI showed no signs of fluid on her cervical spine. The PEG tube differs from a G-tube in that it has a longer tube we will use for the first 6-8 weeks to feed Sophie. After that, she will come back in for outpatient surgery where the PEG tube will be exchanged for a G tube. The PEG tube was placed to allow room for Sophie to grow, and grow we hope she does, now that we will be able to get all of the calories in that she needs! I cannot describe how excited we are to begin celebrating her eating instead of stressing about it. We are hoping that feeding will begin to turn into a more positive experience for her.
We still expect to be in the hospital for several more days as the therapists and doctors agree that we will need to take it slow to make sure Sophie is tolerating her feedings and the tube. I am hoping that we are out of here before Mother's Day but should we remain in the hospital we will make the best of it.
We are so excited to have Cole return to us tonight from Munster. We continue to be grateful to our parents for all of their love and support. We could not survive this without them.
As I type this, Sophie is resting comfortably~I pray that the rest of the night will go smoothly and that we will be able to stay ahead of her pain. We continue to be amazed by how brave our little girl is. We are so blessed to be learning lessons on endurance, perseverance, and courage from this sweet, sweet baby.
Your and your darling little girl are teaching us all life lessons.
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